Only 5.3% (n=11) of clinicians reported being very familiar with FH, with the largest group (47.8%, n=99) reporting some familiarity with FH. An overwhelming majority (97.6%, n=205) were in favor of a CDS tool for FH, stating that it would be helpful for the clinician at the point of care.
Table 1 lists the characteristics of the survey respondents. Over a period of 11 weeks, the final response rate was 18.1% (n=210). Reminders were sent 1 week after the initial invite, and a second reminder sent 2 weeks after the initial invite for participation. Residents were included because they are often the first care provider to interact with patients and uniquely positioned to diagnose this condition. Survey respondents included internists, cardiologists, endocrinologists, geneticists, family medicine physicians, pediatricians, cardiology fellows, internal medicine residents, and family medicine residents. Following comments from both groups, the survey was deployed by the Mayo Survey Research Center via Qualtrics (Qualtrics LLC) to 1161 clinicians in the Mayo Clinic network comprising physicians in Rochester, Minnesota Scottsdale, Arizona Jacksonville, Florida and satellite campuses in Wisconsin and Minnesota. The survey was then administered to a group of preventive cardiologists (n=10) to evaluate comprehension and validity. Revisions were made on the basis of the feedback. The survey was first administered to a group of clinical experts in FH (n=7) to evaluate content and content validity.
The survey was developed to (a) assess the overall level of knowledge regarding FH, including a provider’s ability to correctly identify a lipid profile consistent with FH and (b) gather feedback on what clinicians would prefer in a CDS tool for FH.
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